When My Body Has Other Plans
I would like to file a complaint with my body. Nothing formal, and I don’t think we need attorneys involved, but there are a few things we should discuss. For starters, I would appreciate knowing what kind of day we’re going to have before I make plans.
Some mornings, I feel ready. Let’s ride the bike, let’s get to the gym, let’s do the things that help me feel like myself. Other mornings, my body apparently held a meeting overnight and voted against all of that, and I was not consulted.
I live with Sjögren’s, and part of living with it, for me, is trying to explain something that people can’t necessarily see. There is the dry mouth, the aching, the heaviness and fatigue. Sometimes my legs feel exhausted before I’ve asked them to do anything. And then there are days when the fatigue seems to settle over everything, making even ordinary things feel like they take more effort than they should.
The ache I feel is different from the soreness after a good workout. I actually like knowing I’ve worked my muscles; there’s something satisfying about that. This ache doesn’t come with that satisfaction. It just shows up, and I’ll be honest: I get frustrated.
Some days the fatigue reaches my brain, too. It’s as though my mind is worn out before I’ve really begun, and even things I want to do take more effort than they should. I might have plans, something I’m looking forward to or a task I want to get done, but finding the mental energy to work through it feels harder than it ought to. It’s frustrating when your body feels tired, but it’s another kind of frustration when your brain seems to have joined the overnight meeting and voted against you, too.
I have worked hard to get back to the gym, to get back on the bike, to find some rhythm again. These things matter to me. They give shape to my days and help me feel stronger, more hopeful, and more at home in my own skin.
Not long ago, I went out for a ride planning to do about ten miles. When I got five or six miles out, I knew I could turn around and head home. But I felt good, so I kept going. I even thought about stretching the ride out a little more. Then I decided, "I feel good. Let’s leave it at that."
That might not sound like a big moment. But for me, it was. I was out on my bike, enjoying the ride, and feeling like myself again. So when my body interrupts those plans, it can feel as though something bigger than a workout has been taken away.
Sometimes I miss the ease of doing something without first negotiating with myself about whether I have the energy—physical or mental—to do it. I miss being able to trust that my body and my brain will show up for the day I had planned. Sometimes I want to say, “Can we please just have a normal day?” Whatever normal means.
There is a line in Psalm 139:14 that says we are “fearfully and wonderfully made.” I have probably spoken those words more easily over other people than I have believed them about myself on a difficult morning. Wonderfully made? Even this body? Even when it aches, even when it needs another break, even when it won’t cooperate with the perfectly reasonable agenda I’ve prepared? Apparently, yes. I’m still working on that.
It’s easier for me to appreciate my body when it does what I want, when I finish a ride feeling good or leave the gym pleased with what I accomplished. On those days, gratitude comes pretty naturally. On the harder days, I have to sit with a question I would rather avoid: Can I treat this body with kindness when I’m disappointed in it? Can I listen without turning every limitation into an accusation?
Because I can be hard on myself. Somewhere along the way, “I wanted to do more today” can become “I should have done more today,” and then rest starts to feel like something I need to defend.
I don’t have a tidy spiritual explanation for Sjögren’s. I’m not going to pretend I’m grateful for every ache, or that every difficult day comes with a lesson worth the price of admission. Some days, I would happily skip the lesson.
But I do believe God is present in this life I’m actually living, including the parts I keep hoping will change. That means there is room for my frustration in prayer, and room for hope, too. I can want to feel better. I can keep looking for things that help. I can celebrate a good ride without requiring it to prove that all the difficult days are behind me. And when I need to stop, I can practice believing that nothing essential about my worth has changed.
God does not need my workout summary. Although, after a particularly good ride, I may mention the mileage.
Gratitude comes easily when I come home from a good ride, pleased with what my body could do. I would choose that moment every time. But maybe the Unlikely Altar is the other moment: the morning I change my plans because Sjögren’s has other plans for me, and I find a way to give thanks anyway.
Not for the ache. I meant what I said about that. But in the middle of it, trusting that God is not just watching from a distance, but actively at work in the canceled ride as surely as in the finished one. That kind of gratitude doesn’t come naturally to me, but I’m learning there is room for it on both kinds of days.
I’m still riding, still showing up at the gym, still hoping for more good days, and still learning how to live with the days I wouldn’t have chosen.
If you’re living in a body that has other plans, I hope you have people who believe you when you tell them what it feels like. I hope you find things that help. And when you have done what you can for the day, may you be able to rest without putting yourself on trial.
May I learn to do that, too.




